Sunday, June 30, 2024
Introducing RAISE: Resources and Assistance to Support Empowerment - Conquer: the journey informed
Introducing RAISE: Resources and Assistance to Support Empowerment - Conquer: the journey informed: A registry-style program to help people with cancer overcome barriers to care.
Wednesday, April 10, 2024
S.D. governor Kristi Noem banned from CRST reservation
S.D. governor Kristi Noem banned from CRST reservation: S.D. governor Kristi Noem banned from CRST reservation
I'm proud to be a small West River Eagle team member. We serve the Cheyenne River Sioux Tribe reservation in Eagle Butte, SD. We applaud them for standing up to the governor's appalling comments by banning her from reservation lands. I am honored to be able to cover such a critical story!
Tuesday, June 20, 2023
Saturday, June 17, 2023
Tuesday, June 13, 2023
Nutrition to Combat Fatigue - CONQUER: the journey informed
Nutrition to Combat Fatigue - CONQUER: the journey informed: There’s no simple solution to treat fatigue; instead, improving your energy level may require a few different strategies—nutrition is one of them.
Why Is Cancer Advocacy Important to Me? - CONQUER: the journey informed
Why Is Cancer Advocacy Important to Me? - CONQUER: the journey informed: No matter how hard you push, advocacy can fall on deaf ears, especially among men. Here’s how I am changing the narrative.
Monday, June 12, 2023
How Creativity Helped Me Heal - CONQUER: the journey informed
How Creativity Helped Me Heal - CONQUER: the journey informed: How do art, medicine, and healing intersect? This artist and survivor knows from personal experience.
Sunday, June 11, 2023
A Little Help from Our Friends - CONQUER: the journey informed
A Little Help from Our Friends - CONQUER: the journey informed: Sometimes a small gesture can save a life. Just ask this survivor.
New Immunotherapy Drugs Are Making Headway in the Treatment of Bladder Cancer - CONQUER: the journey informed
New Immunotherapy Drugs Are Making Headway in the Treatment of Bladder Cancer - CONQUER: the journey informed: Take a look at the 5 new promising immunotherapies approved by the FDA for bladder cancer after decades of no new treatment options for this type of cancer.
Hope Against All Odds: My Journey with Immunotherapy for Advanced Bladder Cancer - CONQUER: the journey informed
Hope Against All Odds: My Journey with Immunotherapy for Advanced Bladder Cancer - CONQUER: the journey informed: Michael Morigi shares his very positive experience with immunotherapy in the treatment of his stage III bladder cancer.
Saturday, June 10, 2023
Tuesday, June 6, 2023
Tuesday, May 16, 2023
Rising to the Challenge | Cancer Today
Rising to the Challenge | Cancer Today: James R. Scott uses his experiences with bladder cancer to be a light for others.
#BladderCancer #BladderCanAware #BladderCancerAwareness #BladderCancerAwareness23 #Urostomy #BladderHealth
Sunday, April 16, 2023
Farran Davis Scholarship Fundraiser
April 17th is my departed friend, Farran Davis' birthday. She would have been 34 years old. Please help me honor her life and legacy by raising $3400 in her memory. Proceeds from the fundraiser will go directly to helping cancer patients and survivors in financial need attend Young Adult Cancer Camp, an annual event hosted by Elephants and Tea and Young Adult Survivors United.
Any amount helps, and if you cannot donate, please share and help spread the word.
#JoinTheHerd #WeAretheHerd #FarranDavisScholarshipFund #CutaneousTCellLymphoma #Lymphoma #AYACancer #AYACSM
https://www.facebook.com/donate/198541982935894/
@elephantsandteamagazine @yasurvivorsu @farranloveshouse
Any amount helps, and if you cannot donate, please share and help spread the word.
#JoinTheHerd #WeAretheHerd #FarranDavisScholarshipFund #CutaneousTCellLymphoma #Lymphoma #AYACancer #AYACSM
https://www.facebook.com/donate/198541982935894/
@elephantsandteamagazine @yasurvivorsu @farranloveshouse
Wednesday, April 5, 2023
AYA Aware
We don't want to be your hero or inspiration.
We just simply want to survive, to live our lives.
Tuesday, April 4, 2023
I'm Still an AYA
My latest online piece for Elephants and Tea magazine fits right in with #AYACancerAwarenessWeek. Check it out and then sign up to hear me read it at a LIVE VIRTUAL event on Thursday, April 13th!
#ImStillanAYA #AYACancer #AYAC #AYACSM
https://elephantsandtea.com/survivorship/im-still-an-aya/
Monday, April 3, 2023
AYA Cancer Awareness Week
[photo from September 2020]
IT IS AYA (Adolescent and Young Adult) CANCER AWARENESS WEEK. I'll be sharing throughout the week, but here are just a few of my thoughts that I want to share.
The Hippocratic Oath states "Do no harm."
However, story after story in the AYA Cancer Community proves that physicians are indeed doing harm. They are doing harm by not listening to their patients when they clearly state their symptoms. They are doing harm by giving up when the usual tests show no results. They are doing harm when they refuse to refer to specialists even when requested. They are doing harm by not taking the time to figure out what is wrong and working WITH their patients to FIND solutions!
Physicians are indeed doing harm when they ignore young adults and when they believe the outdated data and stereotypes of "you're too young for cancer," among others. No one is too young for cancer. Cancer does not discriminate. People do.
As a young adult bladder cancer survivor, I fought for more than 2 years to get my diagnosis. I did not present typically - go figure - women have different anatomy so who would think they would present differently than men with stereotypical cancer that affects old, chainsmoking white men. I shouldn't have had to fight. I shouldn't have needed to BEG for answers.
If a man complained about urinating blood clots, all the alarms would have been sounded. The doctor wouldn't have asked "Are you sure it's not your menstrual cycle?" as if you don't already know that those things come out of two completely different orifices!
Physicians are also doing harm in our survivorship phase. They do harm by not connecting us to survivorship programs and centers. They do harm by not devising a comprehensive survivorship plan and continuing to support us in our survivorship. They are doing harm by not believing, researching, and helping to find solutions to the permanent side effects that many of us face for the remainder of our lives.
Cancer myth #6474 is that when treatment is over, so is cancer. The ongoing struggles we face are mental, emotional, physical, financial, and societal. They are neverending and we are often scooted out the door as we ring the bell - if we even get to ring a bell.
Life does not go back to normal - we create a new normal with whatever we have left after cancer. There is no going back to who we were before.
IT IS AYA (Adolescent and Young Adult) CANCER AWARENESS WEEK. I'll be sharing throughout the week, but here are just a few of my thoughts that I want to share.
The Hippocratic Oath states "Do no harm."
However, story after story in the AYA Cancer Community proves that physicians are indeed doing harm. They are doing harm by not listening to their patients when they clearly state their symptoms. They are doing harm by giving up when the usual tests show no results. They are doing harm when they refuse to refer to specialists even when requested. They are doing harm by not taking the time to figure out what is wrong and working WITH their patients to FIND solutions!
Physicians are indeed doing harm when they ignore young adults and when they believe the outdated data and stereotypes of "you're too young for cancer," among others. No one is too young for cancer. Cancer does not discriminate. People do.
As a young adult bladder cancer survivor, I fought for more than 2 years to get my diagnosis. I did not present typically - go figure - women have different anatomy so who would think they would present differently than men with stereotypical cancer that affects old, chainsmoking white men. I shouldn't have had to fight. I shouldn't have needed to BEG for answers.
If a man complained about urinating blood clots, all the alarms would have been sounded. The doctor wouldn't have asked "Are you sure it's not your menstrual cycle?" as if you don't already know that those things come out of two completely different orifices!
Physicians are also doing harm in our survivorship phase. They do harm by not connecting us to survivorship programs and centers. They do harm by not devising a comprehensive survivorship plan and continuing to support us in our survivorship. They are doing harm by not believing, researching, and helping to find solutions to the permanent side effects that many of us face for the remainder of our lives.
Cancer myth #6474 is that when treatment is over, so is cancer. The ongoing struggles we face are mental, emotional, physical, financial, and societal. They are neverending and we are often scooted out the door as we ring the bell - if we even get to ring a bell.
Life does not go back to normal - we create a new normal with whatever we have left after cancer. There is no going back to who we were before.
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